Wednesday, 5 December 2018

my Email feedback re Digital Health & Social Care Conference 28Nov18 Glasgow

I kept receiving reminder Emails asking for feedback on the Digital Health & Social Care Conference I briefly attended on 28 November 2018 in the Technology & Innovation Centre, Strathclyde University, Glasgow.  So I sent this response earlier, copied in to my MSP, MP and CabSec for Health at Scottish Parliament:

"Dear Kathleen

I left the conference during the panel session when Angiolina Foster started speaking.  I could not thole any more as an unwaged Carer, activist, human rights campaigner and whistleblower about the locked seclusion room abuses at Stratheden Hospital.  I thought the event was more about selling products, apps, jargon, and scaremongering about elderly people, who in my experience have a lot to offer society but are stymied by negative stereotypes and seen as burdens rather than assets.  Hal Wolf in particular was peddling his wares just like IHI Boston, Mass, have done via Brian Robson, Jason Leitch et al.  Scotland deserves much better, in my opinion.

For nearly 7 years I have singlehandedly supported my son Daniel after Nurses locked him in the Stratheden IPCU seclusion room without toilet, light or water, for hours on end.  He had to defecate on the floor because no Nurses heard him shouting that he needed the toilet, this was on the 4th night they locked him in, 8 February 2012.  Because I raised complaints we were abandoned by community MH services and Fife Council Social Work together with Fife Police and NHS Fife tried to frame me for Nurse abuse.  I didn't even know they were investigating me until asking via an FOI request for their Adult Protection Investigation Report in around the August 2012.  I got a paper copy handed over in Cupar social work office and upon reading found out that my raised concerns had resulted in me being under the spotlight, not the NHS staff who for decades have been using this cell to "manage" Stratheden Ward 4/IPCU patients.  It was human rights abuse perpetrated on vulnerable people in need of care and support.  I never even knew they had a locked seclusion room despite engaging with that hospital since 1995.

I'm not doing the evaluation form, not a good use of my time.  I had hoped for this event to be innovative but I saw no evidence of this in the Keynote presentations.  I could not identify with Anna Fowlie's take on internet engagement.  I did Algol computer programming 1969/70 at Perth Academy, also 6th year studies Maths.  In the mid 1980's at Rigside, Lanarkshire, where I did grassroots voluntary community development work, all that decade, along with other Mothers like me, we got an introduction to computers in the Rigside community hall (now the school is based there).  I'd learnt touch typing in the 1970's then in 1994/5 I did an HNC Office Admin at Elmwood, best student, taking extra units, then going into 3rd year BA Admin Management at Fife College 1995/6, again best student, where we learnt about the global village, Charles Handy, database management, corporate planning, many other interesting topics, I was 44.  This is the best academic course I've ever done, the topics suited me very well, doing the degree in 2yrs instead of 3.

In 2008 aged 55 I dived into Scotland's mental health world to promote peer support, recovery, because I had survived 3 episodes of psychosis and coercive psychiatric treatment, making a full recovery, tapering, coming off the drugs myself.  I thought my Lived Experience would be of use to the likes of Scottish Recovery Network, Penumbra, SAMH and others.  But within a few months I met with resistance and was put in my place by people with far less life experience, qualifications, knowhow or intellectual ability.  Soon they excluded me from events, resorted to bullying and intimidation.  And that became the pattern over the years because I wouldn't fall into line behind stupid people.  I have to be honest.  I would never have survived, recovered from psychiatric abuse if I was a follower rather than a leader.  I don't believe in mental illness and think it's a psychiatric construct to justify failures in the system to heal patients. 

I've recounted something of my story (I'm now 66yrs young) in this Email to demonstrate my breadth and depth of life experience, digital/computer/online abilities.  I update my website using HTML, having learnt it by cut and pasting, after my son set up Chrys Muirhead Associates in January 2008, to my design.  I don't update it much at present, do more blogging although even that is sparse as I'm concentrating on keeping fit, swimming most days in Dundee which involves two buses there and back from where I live in Springfield.  We have no car now, hope soon to move to Dundee, where it will be easier to have a life on a low income.  There is no money to be made in whistleblowing about human rights abuses in NHS settings in Scotland.  No justice for the psychiatrically abused.  We are on our own, fighting the system.

Regards, Chrys"

copying in my MSP, MP and CabSec Health

Chrys Muirhead
writer, storyteller, swimmer, cyclist, photographer, gardener, traveller

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