Here is a letter I sent in an Email on 14 February 2015 to the academics with whom I have engaged, at the Edinburgh and Glasgow DClinPsy user/carer groups, since September 2009, trying to be "meaningfully involved" as an "expert by experience":
Strapline: on being perceived as a guinea pig - the long road of
humiliation and jumping through the hoops with the DClinPsy
"Dear DClinPsy Professors and Academics
I woke up this morning looking back over the years of trying to be involved as an equal, a person, on the "user carer" groups at both Glasgow and Edinburgh. And how difficult it was. Apart from my relationships with the admin staff who treated me like an equal and not as a guinea pig, for research purposes.
It wasn't long after that the (voluntary sector mental health organisation) woman resigned and another worker got the job, the guy who accused me of "demonising psychiatry" at the final Glasgow CUSP meeting I attended in 2014. He pointed the finger because I had been criticising the use of ECT on children and he said only a few would be getting it, as if that was OK. This man and his service user colleague, who holds positions at the (voluntary sector mental health organisation), bullied me off the SEAN user reference group at the end of 2012, ganging up on me. And then there is the other guy, (position), who objectifies women at the meeting. And gets away with it. Nothing was ever done to shut him up. Yet I got bullied for speaking out against ECT for children.
That's the reality.
I will have more to say about this, now that I'm not a guinea pig.