This week I'm taking part in user testing the EUPATI e-learning platform on Moodle.
"The consortium project "European Patients‘ Academy on Therapeutic Innovation" (EUPATI),
funded by the Innovative Medicines Initiative, will provide
scientifically reliable, objective, comprehensive information to
patients on medicines research
and development. It will increase the capacities and capabilities of
well-informed patients and patient organisations to be effective advocates and advisors in medicines research, e.g. in clinical trials, with regulatory authorities and in ethics committees."
"The EUPATI Training Course aims to encourage participants to apply knowledge and skills acquired via three main areas:
Patient Representation: EUPATI Patient Experts could actively engage in representing a patient perspective in the medicines development process by interacting with scientific committees, HTA agencies, industry, regulatory bodies, academia and other relevant stakeholders.
Communication: EUPATI Patient Experts could contribute to raising awareness on patient involvement
in medicines R&D amongst lay patients, hard-to-reach patients and
the lay public. Some examples of activities: writing articles and press
releases; organising press conferences; facilitating cooperation with
media; being a spokesperson in TV and radio programmes; utilising social
networks and blogs.
Patient Experts could play the role of facilitators/trainers by
engaging in activities supporting the dissemination of the education and
information programmes for audience 2 - patient advocates, and audience
3 – lay patients and the general public in their countries through
their patient communities and networks. Some examples of activities:
providing training to patient advocates; leading workshops; running
information sessions for people interested in participating in clinical
trials or wanting to learn more."