Wednesday, 21 May 2014

taking part in user testing the EUPATI e-learning platform

This week I'm taking part in user testing the EUPATI e-learning platform on Moodle.

"The consortium project "European Patients‘ Academy on Therapeutic Innovation" (EUPATI), funded by the Innovative Medicines Initiative, will provide scientifically reliable, objective, comprehensive information to patients on medicines research and development. It will increase the capacities and capabilities of well-informed patients and patient organisations to be effective advocates and advisors in medicines research, e.g. in clinical trials, with regulatory authorities and in ethics committees."

"The EUPATI Training Course aims to encourage participants to apply knowledge and skills acquired via three main areas: 

Patient Representation: EUPATI Patient Experts could actively engage in representing a patient perspective in the medicines development process by interacting with scientific committees, HTA agencies, industry, regulatory bodies, academia and other relevant stakeholders.

Communication: EUPATI Patient Experts could contribute to raising awareness on patient involvement in medicines R&D amongst lay patients, hard-to-reach patients and the lay public. Some examples of activities: writing articles and press releases; organising press conferences; facilitating cooperation with media; being a spokesperson in TV and radio programmes; utilising social networks and blogs.

Education/Training: EUPATI Patient Experts could play the role of facilitators/trainers by engaging in activities supporting the dissemination of the education and information programmes for audience 2 - patient advocates, and audience 3 – lay patients and the general public in their countries through their patient communities and networks. Some examples of activities: providing training to patient advocates; leading workshops; running information sessions for people interested in participating in clinical trials or wanting to learn more."


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